Impatient patients go to the online shoppers club & # 039; & # 039; for new drugs

Impatient patients go to the online shoppers club & # 039; & # 039; for new drugs https://www.eresviral.com/wp-content/uploads/2018/10/Los-pacientes-impacientes-acuden-al-club-de-compradores-en-línea-amp-039-amp-039-para-nuevas-drogas

Impatient patients go to the online shoppers club & # 039; & # 039; for new drugs



LONDON (Reuters) - Frustrated by delays in the arrival of new drugs in their own country, a small but growing number of patients turn to an online broker who considers himself to be a legal version of the Dallas Buyers Club.







PHOTO OF ARCHIVE: The tablets and pharmaceutical capsules are arranged in a table in this illustration taken in Ljubljana on August 20, 2014. REUTERS / Srdjan Zivulovic / File Photo




While regulators warn about the risk of buying drugs online, Amsterdam-based Social Medwork believes that its network of trusted providers is filling a gap in the market for the latest drugs against diseases such as cancer, migraine and Multiple sclerosis


Now it is looking to raise its profile and expand by registering former EU Commissioner Neelie Kroes at its supervisory board and securing 1.5 million euros ($ 1.73 million) in new funds from the Social Impact Ventures capital fund.


Like Ron Woodroof, the AIDS patient of the 1980s in the movie "Club of Dallas Buyers," patients who can not get the drugs they want through local health systems are using the organization for auto -import medications from abroad.


But while Woodroof had to smuggle drugs across the border into Mexico, Social Medwork customers can place orders online legally, as long as they have a prescription and a doctor's letter stating that the medication is strictly for personal use.






FILE PHOTO: Pharmaceutical tablets and capsules in foil strips are arranged in a table in this illustration taken in Ljubljana on August 20, 2014. REUTERS / Srdjan Zivulovic / File Photo



In the last 18 months, the group, which is registered with the Ministry of Health of the Netherlands as an intermediary of medicines, has provided more than 3,000 patients.


They include British migraine victim Senty Bera, 43, who recently used the system to buy Aimovig, a new monthly injection of Amgen and Novartis migraine, the first in an improved class of drugs that attack a chemical involved in trigger attacks


"My quality of life was so poor that I thought it was worth trying and that it is working brilliantly," said Bera.


So far, Aimovig is not approved for use within the state health service of Britain, although Bera expects it to be soon, but its reputation means that it is one of the best sellers of Social Medwork, despite a price of 698 euros for two autoinjectors.


A spokeswoman for Britain's Regulatory Agency for Medicines and Health Products confirmed that there were no formal restrictions on the importation of such medicines for personal use.


In the past, informal networks of drug purchases. here They have helped to provide cheap generic versions of treatments for HIV and hepatitis C. But the Dutch group, which charges a rate of around 6 percent, claims to be the only organization focused on recently approved brand-name drugs.






FILE PHOTO: Pharmaceutical tablets and capsules are placed on a table in an illustration taken on September 18, 2013. REUTERS / Srdjan Zivulovic / File Photo



With clients in 70 countries, its line includes new cancer drugs that are approved by the US. UU But they are not yet available elsewhere, as well as medications for chronic disorders, such as Roche's new treatment for multiple sclerosis, Ocrevus.


Founder Sjaak Vink says that the Internet means that patients are increasingly aware that they may be waiting months or even years to receive new drugs after a first approval elsewhere.


"We really need to close this gap because this situation is ridiculous," he said in an interview.


Vink said he was inspired to found the organization because of delays in the European availability of innovative cancer immunotherapy from Merck & Co, Keytruda.


Today, his group has clients in Australia, the Middle East and Asia, as well as in important European markets such as France, Italy, Germany and Great Britain, where drug delays could worsen if Brexit interrupts supply lines.


Given the quick approvals of the US Currently, there are fewer clients in the United States, although there was an increase in the demand for EE. UU Last year for the drug for amyotrophic lateral sclerosis Mitsubishi Tanabe Pharma, which was approved for the first time in Japan.


($ 1 = 0.8651 euros)




Edited by Louise Heavens





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